My hair!!!

Wild, bushy, fluffy, thick, curly, ginger, beautiful. All words used to describe my hair over the years. So much of my identity in those many…… many strands.

If I lose it, do I lose my identity?

Of course not. As a friend kindly pointed out, I am much more than my hair or my boobs. I am tough, loyal, giving, a team player, a parent, a wife, a daughter, a sister and a friend. All of which I can do with or without hair.

For my husband, he has seen many transitions through my hairstyles, from quite severely short, to mid length, to long and back to mid length. This will just be another phase.

However, my hair ritual has always been very important to me. I have attended the same salon every six weeks, for sixteen years!! It isn’t just about my hair itself, it’s about the routine as my sister pointed out. The chat, the magazines, the cup of tea, the head massage and the connections are just as important as what is being done to my hair.

So today I went for my last full hair experience before chemo. Cut, colour, massage, blow dry and style. Plus the chat, magazine, tea, hugs and pamper. The girls made me feel special and today’s experience made me come to a decision.

I will fight for my hair, but I won’t put myself through hell to save it.

I have been deliberating over whether to try the cold cap offered to some chemo patients. The idea is to take the scalp temperature right down and constrict the blood vessels, reducing the amount of drug reaching the hair follicles. It is exactly what it sounds like, and means enduring an ice cream headache possibly for the duration of treatment (around three hours). Although some say after 15 minutes you go numb. It may or may not work.

So, I’ve had a chop to get good scalp contact and I’ll give it a try. If it doesn’t work or is too unbearable ………… well bald will just be my next phase.

Rocking the pre chemo chop

One thing is for sure, hair or not, I can still go to the salon every six weeks for a massage, cuppa and a chat. I’ll be welcomed with open arms and it will help me to feel ‘normal’

Ax

Asking for and accepting help

This is a continuation of my last blog post https://theboobee.blog/2025/02/19/to-tell-or-not-to-tell/. What happens once people know…..

I have never been very good at accepting help. I never, never ask anyone for help, because in my mind it is a sign of weakness. To me, it means I am not capable of sorting myself out. I would rather ‘bust a gut’, ‘run around like a headless chicken’ and almost systematically feed my anxiety, just to prove I can do it all.

But the situation I now find myself in, has made me look back and realise how silly that all sounds. Who was I trying to prove myself to??

The answer of course is……………. me. No one else ever put that pressure on me or expected me to do everything…………… except perhaps my children. But, that is purely because I created that kind of environment and those expectations at home. I did so much for them, that it became an expectation.

In this modern world, everyone is busy and caught up in their own stuff. None of us are immune. Sometimes we completely loose sight of those around us and what they can do for us, but also what we can do for them. We are afraid to put burdens on each other because we are barely coping with our own shit, without taking on someone else’s.

But when something like the big C comes along, somehow an army of people around me, created space in their lives to help. From meals and baking that arrived on my doorstep, to the crafts and activities, to the friend who sat and crafted with me, to those that drove me places, to those that made sure my children were doing ok, to medical advice and supplies, to today’s homegrown vegetable delivery and weeks of beautiful messages of support.

I didn’t ask for any of it, but I certainly appreciated every single bit of it. And for the first time I was able to accept it all without feeling terrible about troubling people. It’s because I felt like a had a valid excuse to accept it! (So silly) But what I noticed, was how much they were getting out of it too. Not only was it helping me, it was helping them to feel useful and needed.

It is proven that volunteering is one of the most healthy things you can do for yourself. It offers a sense of fulfilment, breaks your daily routine and offers new relationships. The whole crux of being needed as a volunteer is that someone asked for help in the first place. Nothing to be ashamed of, but something to be celebrated. It shows bravery, self awareness and a healthy knowledge of boundaries and capabilities.

So, one of the many things I am learning on this is journey, is that it is okay to admit you need help, to accept the help of friends and family as well as strangers. You never know what beautiful relationships may develop.

Lending a helping hand

I received a message of well wishes the other day from a lady whose dog my daughter and I walked for 2 years when she was not able. We developed a special relationship that I had almost forgotten about because I was too ‘busy’. Her circumstances changed and we rarely see her. Having heard my news, she sent messages of love and support.

It reminded me that, although it is impossible to keep every relationship alive and current, we can always send our love when needed, and whatever little thing we can do to help, will be appreciated. And, above all……… when you need it……….. never be afraid to ask for help.

Ax

P.S Let’s see if I can heed my own advice!

Missing out – Jetty swim 2025

Warning: This one is a tear jerker….

One of my biggest fears after diagnosis was what I might miss out on this year. Would it effect holiday plans, events with the kids and swimming? An early realisation was ………I would have to miss the 2025 Busselton Jetty Swim. It would be the first time in 15 years I wasn’t out there.

This was particularly devastating for me. It is an event that I am so passionate about. Over the years I have done many solo swims (3.6km) but I have also swum it in duos and teams. These were because I wanted to share this beautiful event with those I love and the kids I coached.

In recent years, I had done the mile, once escorting a beautiful friend and last year because I missed out on a solo entry. Incidentally, that turned out to be one of my most competitive swims, finishing 4th in the old lady’s division!

It never mattered to me which way I was swimming it as long as I was in there. I’ve watched the men and women in their 70s and 80s, blind and disabled. Families, friends and couples achieve their goals. And then there are the people that have overcome huge challenges just to be there. It is so inspiring. The swim’s tagline is ‘everybody’s swim’ and that’s exactly what it is.

Yesterday was the day. I planned to sit at home and have a nice breakfast and look forward to 2026. But a part of me knew there would be an awful lot of ‘poor me’ going on in my brain.

But then my army stepped forward….

The people I had encouraged and hopefully inspired along the way, stood up and did it for me (of course they had their own reasons but I know they were thinking of me). From our friends that meet us for early morning swims in the shark net, to the friend I meet weekly at Yallingup lagoon, to kids I’ve coached, to my friend who had been building her way up to a full solo and overcoming injury……. to my beautiful and courageous son.

They did it for themselves and me.…… and the conditions were horrendous.

For my boy, it was a last minute decision. He hadn’t trained, an ex competitive swimmer who had lost the love. A spot came up and being a lifeguard at the pool, he had listened to the swim coach’s preparations and tips for his squad and he thought…… I can do that.

As a parent, there are many proud moments but I’m not sure anything will top this one for me. It hurt him like hell and as I say the conditions were crap, but he kept going.

His one request was that I was at the finish line. It was a bit of an effort, but of course I got there and this was my reward…

The finish line

It turns out the 2025 (30th Busselton jetty swim) will be one of the most memorable. As a wise person in my family said ‘I could not have handed the baton to a more reliable person’

And the challenge is set….

He told me last night, he’s training for the solo next year and he’s going to beat me.

Bring it on!!

Ax